Am I the only one in such pain?
WHO AM I?
My symptoms started when I was in in my early 20’s, and it took another 15 years before a family doctor diagnosed me with the condition. I am still able to work watching children, but have to do so from home. The HS in my groin area prevents me from doing anything else. The pain I’d describe as very bad, and I have to take Tylenol 1-3 times a day because of it. I’m not on any medication currently for my HS because nothing has helped, but I’m hoping to find out about Humira and if it’s available in Alberta, Canada.
WHAT HAPPENS TO ME?
“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”
“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”
“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”
WHAT ARE WE DOING HERE?
“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”
“It makes me feel good to be here and be around other people who know what I’m going through.”
“People actually listen to me when I describe what’s happening.”
Sharing experiences and stories helps. We’re Listening. Every Voice Matters.