Am I the only one in such pain?
WHO AM I?
I’m a 21 year old woman with HS disease. I don’t want to admit that most days I ball my eyes out wondering when I’ll be normal again. Other times I wonder when I will be able to think of myself as a good wife who can clean, cook, do laundry, and so on. There are so many things in life I took for granted before HS
WHAT HAPPENS TO ME?
“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”
“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”
“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”
WHAT ARE WE DOING HERE?
“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”
“It makes me feel good to be here and be around other people who know what I’m going through.”
“People actually listen to me when I describe what’s happening.”
Sharing experiences and stories helps. We’re Listening. Every Voice Matters.