Am I the only one in such pain?
WHO AM I?
The pain from HS I’d describe as severe. I take ibuprofen and it eases the pain off a little, but with the constant burning, it really doesn’t help it at all. There are several challenges I’ve encountered living with HS. I don’t have much of a social life and definitely not having a relationship. The constant pain, drainage, and odor cause me not to date at all.
WHAT HAPPENS TO ME?
“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”
“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”
“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”
WHAT ARE WE DOING HERE?
“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”
“It makes me feel good to be here and be around other people who know what I’m going through.”
“People actually listen to me when I describe what’s happening.”
Sharing experiences and stories helps. We’re Listening. Every Voice Matters.