We know you’re wondering.
WHO AM I?
I am a Nurse and have been for 12 years, but HS disease has affected the field that I am employed in. Psychiatric nursing was my passion and I excelled with that population, as well as medically fragile patients. I cannot physically endure caring for them full time though due to pain from flares or areas where I’ve had surgical procedures in the past. Now I stick with office nursing jobs.
WHAT HAPPENS TO ME?
“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”
“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”
“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”
WHAT ARE WE DOING HERE?
“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”
“It makes me feel good to be here and be around other people who know what I’m going through.”
“People actually listen to me when I describe what’s happening.”
Sharing experiences and stories helps. We’re Listening. Every Voice Matters.