"I'm Amanda"

I was 23 when my symptoms started, and I received my diagnosis pretty quickly since I already had a good relationship with my dermatologist. I had cystic acne that I had almost cleared up with Accutane before my HS started.


"I'm Shannon"

I’m a 23 year old woman with HS disease. Because of this condition, my self-esteem has suffered tremendously. I’m about to be married, and still wonder why my fiancé loves me so much? I feel like I don’t deserve it.


"I'm Cheyenne"

I’m a 21 year old woman with HS disease. I don’t want to admit that most days I ball my eyes out wondering when I’ll be normal again. Other times I wonder when I will be able to think of myself as a good wife who can clean, cook, do laundry, and so on. There are so many things in life I took for granted before HS


“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”

“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”

“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”


“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”

“It makes me feel good to be here and be around other people who know what I’m going through.”

“People actually listen to me when I describe what’s happening.”

Sharing experiences and stories helps.  We’re Listening. Every Voice Matters.


It’s easy to be a part of HS Aware. Choose your level of comfort.

A little bit…

A little bit more…

And a little bit more…

Become a part of HS Aware.  You Belong Here.