WHO AM I?

Shannon

"I'm Shannon"

I’m a 23 year old woman with HS disease. Because of this condition, my self-esteem has suffered tremendously. I’m about to be married, and still wonder why my fiancé loves me so much? I feel like I don’t deserve it.

Cheyenne

"I'm Cheyenne"

I’m a 21 year old woman with HS disease. I don’t want to admit that most days I ball my eyes out wondering when I’ll be normal again. Other times I wonder when I will be able to think of myself as a good wife who can clean, cook, do laundry, and so on. There are so many things in life I took for granted before HS

Brandi

"I'm Brandi"

I’m a 31 year old woman living with HS Disease. This condition has caused my pain threshold to rise a great deal. You live in constant pain, but after a while either your body, or mind, develop ways to filter it out.

WHAT HAPPENS TO ME?

“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”

“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”

“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”

WHAT ARE WE DOING HERE?

“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”

“It makes me feel good to be here and be around other people who know what I’m going through.”

“People actually listen to me when I describe what’s happening.”

Sharing experiences and stories helps.  We’re Listening. Every Voice Matters.

GET INVOLVED

It’s easy to be a part of HS Aware. Choose your level of comfort.

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Become a part of HS Aware.  You Belong Here.