WHO AM I?

Cathy

"I'm Cathy"

Hello, I’m Cathy and I’m a 50 year old woman with HS disease. It’s difficult to go to the beach or pool as I need to get out right away, dry off and change immediately. Since I cover my wounds with gauze and tape, it’s not an easy task.

Bryan

"I'm Bryan"

Hello, my name is Bryan and I am a 40 year old male with HS disease. The pain, anxiety, fear, depression, disgust, and anger from HS all work against me daily, but I have been able to hold on so far!

Amanda

"I'm Amanda"

I was 23 when my symptoms started, and I received my diagnosis pretty quickly since I already had a good relationship with my dermatologist. I had cystic acne that I had almost cleared up with Accutane before my HS started.

WHAT HAPPENS TO ME?

“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”

“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”

“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”

WHAT ARE WE DOING HERE?

“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”

“It makes me feel good to be here and be around other people who know what I’m going through.”

“People actually listen to me when I describe what’s happening.”

Sharing experiences and stories helps.  We’re Listening. Every Voice Matters.

GET INVOLVED

It’s easy to be a part of HS Aware. Choose your level of comfort.

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Become a part of HS Aware.  You Belong Here.