Before I knew I had HS, I’d arrive in hospital and have my “boils” lanced and packed, resulting in missed work and a long healing process. The pain from HS Disease I’d say was agony; it’s the kind that stops you dead in your tracks. There is also the constant worry when you have an active sore of what happens if it breaks and blood is everywhere? I’ve been in that position and it was taxing, to say the least.
I was 17 when my symptoms started, but it took another 6 years to get my proper diagnosis from a doctor at a family practice. She was an amazing doctor who knew what it was at first sight. I work in Human Resources, and for a while HS affected my ability to do my job. I was unable to move my arms without pain. I could barely get myself dressed for work or move my computer mouse because of the pain. It would cause tingling in my arms from pressing on nerves. I’m happy to say though, that is no longer the case!
I’d describe the pain from HS like a needle puncturing your skin from the inside out. It’s always there but movement makes it worse and more uncomfortable. It’s the type of pain where you could just lay down all day with ice packs.
Hello, I’m Cathy and I’m a 50 year old woman with HS disease. It’s difficult to go to the beach or pool as I need to get out right away, dry off and change immediately. Since I cover my wounds with gauze and tape, it’s not an easy task.
I was 23 when my symptoms started, and I received my diagnosis pretty quickly since I already had a good relationship with my dermatologist. I had cystic acne that I had almost cleared up with Accutane before my HS started.
I’m a 23 year old woman with HS disease. Because of this condition, my self-esteem has suffered tremendously. I’m about to be married, and still wonder why my fiancé loves me so much? I feel like I don’t deserve it.
I’m a 21 year old woman with HS disease. I don’t want to admit that most days I ball my eyes out wondering when I’ll be normal again. Other times I wonder when I will be able to think of myself as a good wife who can clean, cook, do laundry, and so on. There are so many things in life I took for granted before HS
I’m a 31 year old woman living with HS Disease. This condition has caused my pain threshold to rise a great deal. You live in constant pain, but after a while either your body, or mind, develop ways to filter it out.