Hello, my name is Stephanie and I’m a 25 year old woman with HS disease. The pain from the disease is more than just physical pain; it’s an emotional pain that often leads to complete emotional devastation. Physical pain can be managed, wounds can be dressed and antibiotics can help provide relief. What a lot of people don’t tell you is that emotionally every day is a battle.
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Hello, my name is Jessica, and I’m a 30 year old woman living with HS disease. The pain from it is unbearable at times; it feels like my skin is ripping, burning, stabbing and throbbing. The pressure is awful, not to mention the constant itch you cannot scratch.
Hello, my name is Laura and I’m a 25 year old woman who has been living with HS for over a decade. HS is a messy and ugly condition, and it makes you feel messy and ugly as well. Differentiating between you and your condition is a battle in itself, one that I fight every morning in the mirror.
I wish there was a cure for HS because it changes your life for the worst. It is an awful smelling, emotionally draining and embarrassing disease that gives me feelings of worthlessness. I miss being able to do the things I used to like running, but any sports that involves moving freely I can’t do without pain. It’s a disease where people don’t believe you when you say your sick because one day you look fine, and the next you can barely move.
The biggest challenge I have living with the disease is being cautious about the clothes I wear. There are a couple of shirts I’d love to put on, but I’d be afraid of staining them. If I didn’t have HS, I wouldn’t be afraid to shave my underarms. I would be free to wear what I want.