The biggest challenge I have living with the disease is being cautious about the clothes I wear. There are a couple of shirts I’d love to put on, but I’d be afraid of staining them. If I didn’t have HS, I wouldn’t be afraid to shave my underarms. I would be free to wear what I want.
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My story is simple. In many ways, it’s a lot like yours – I have to work, I like to go to movies and concerts. I have a beautiful young daughter I love to be with. And I’ve got HS and it has prevented me many times from enjoying things that matter to me. Comments comments
I’m a writer who was a photographer that went to acting school where I specialized in directing. I feel that HS [and a rare form of Arthritis that occasionally manifests with it] has stolen my adult life before I had a chance to live it. It’s for that reason I’ve become devoted to increasing the awareness of the disease.