Add your story to our collection.

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"I'm Jessica"

Hello, my name is Jessica, and I’m a 30 year old woman living with HS disease. The pain from it is unbearable at times; it feels like my skin is ripping, burning, stabbing and throbbing. The pressure is awful, not to mention the constant itch you cannot scratch.

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"I'm Charlotte"

I can’t count how many dermatologists I’ve seen since I was 12 – I’m now 37. I’ve had many surgeries, struggled with weight and smoking too. And stopped wearing white a long time ago.

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"I'm Mercedes"

Hello, my name is Mercedes and I’m a twenty four year old woman who was diagnosed with HS three years ago. I think it would be nice to have 1 day where I don’t have to worry about a disease that completely controls me.

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"I'm Laura"

Hello, my name is Laura and I’m a 25 year old woman who has been living with HS for over a decade. HS is a messy and ugly condition, and it makes you feel messy and ugly as well. Differentiating between you and your condition is a battle in itself, one that I fight every morning in the mirror.

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"I'm Raquel"

Hello, I’m Raquel, a 44 year old female diagnosed 10 years ago. I believe that HS, like many illnesses, can be character building. It has made me stronger, more understanding and willing to help others.

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"I'm Joelle"

I wish there was a cure for HS because it changes your life for the worst. It is an awful smelling, emotionally draining and embarrassing disease that gives me feelings of worthlessness. I miss being able to do the things I used to like running, but any sports that involves moving freely I can’t do without pain. It’s a disease where people don’t believe you when you say your sick because one day you look fine, and the next you can barely move.

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"I'm Erika"

The biggest challenge I have living with the disease is being cautious about the clothes I wear. There are a couple of shirts I’d love to put on, but I’d be afraid of staining them. If I didn’t have HS, I wouldn’t be afraid to shave my underarms. I would be free to wear what I want.

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"I'm Krystle"

It’s difficult to explain to people how much pain you’re in when what they see looks normal. They can’t see the scarring, or know how embarrassed you’re feeling. They don’t understand the pain and exhaustion from living with the disease.

Read more about Krystle


"I'm Maria"

My story is simple. In many ways, it’s a lot like yours – I have to work, I like to go to movies and concerts. I have a beautiful young daughter I love to be with. And I’ve got HS and it has prevented me many times from enjoying things that matter to me. Comments comments

Read more about Maria